Tuesday, December 23, 2008

About Julian - From Andrea

From Julian's Care Page:
Julian is a sweet boy who loves to pick flowers for his mommy and daddy, blow kisses and prays almost daily that God will drop food from heaven for the hungry children.
He has a big brother, Nolan, two dogs and fish. His friends include kids and various stuffed animals who he accounts for each night.
He loves to draw pictures, ride his scooter and trike, build sandcastles and smash them and build Thomas the Tank engine villages and smash them. He also loves to plow through the pillows on the couch smashing through them like a race car or a train.
He attends Junior Kindergarten at Lil' Lighthouse Preschool and church at Newport Mesa Church (the Red Room). He loves his friends there and in our street.
Over the summer of 2008, he would mention from time to time that he had a headache. They were mild and didn't get in the way of his daily activities. He also had a spell of vomiting in the morning. We were puzzled with what was going on. After his well-child visit in September, we had some bloodwork done and nothing showed up as abnormal, except for a mild milk allergy. He did drink a lot of milk, so we cut back on milk and the vomiting also stopped. But he continued to mention a headache from time to time. There was no real pattern to this, though, and they were by no means severe. I had taken him to an urgent care center also in September and the MD checked his eyes to see if there was any pressure in the brain. He said he didn't see any so for several weeks I was under the impression I needn't worry that something awful like a tumor may be causing these problems. Time marched on and his weight continued to drop and his energy levels, too. He couldn't keep up with kids much younger than him. In late November we noticed he seemed unsteady and his balance was a bit off. The time had come for an MRI and we called to set up an appointment. Another week passed --including a night of worsening headaches-- and we feared going through the weekend without knowing what was going on. His MRI was at 3:30 p.m. on Dec. 5 and by 4:30 p.m. we learned he had a 'large' tumor in the lower back part of his brain.

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