First, let me say thank you to everyone for your amazing support of Jammin' for Julian! It was a wonderful day of beautiful music made by the most darling children and teens. I am still so inspired by it and by the love that was demonstrated by everyone. We will never forget it.
Julian has handled this week's chemotherapy well. He did get sick, but they have a great drug, Zofran, which minimized the nausea. He has been mostly tired and a bit depressed because he really wants to go home. Originally, we thought this would be a 3-day visit, but we are now in day 6. He doesn't want to get out of bed or visit the playroom, either. The main thing is that they want to address his eating problems. He will have an endoscopy done today to look inside his stomache and small intestine, and then an NG tube placed into his nose so food can go into his stomach. He won't like that very much, but it has to be done. Right now, he has no desire or interest in eating and has had no solid foods for months. So, we're hoping his system will get used to food again.
Well, that's the latest from room 392!
Love,Andrea and Julian
Monday, March 30, 2009
Friday, March 20, 2009
Message from Andrea - March 20, 2009
God is so merciful. Yesterday we received wonderful news from our doctor that Julian's MRI this week came back clear! This means there was no evidence of any new cancer growth in his brain or spine. Dr. Shen wants to do a lumbar puncture next week just to be certain. We are very thankful for this encouraging news.
We are finishing up our 'break' from treatment and next week Julian starts round 2 of chemo. He'll be in the hospital for three days and will get an NG tube during that time (a feeding tube that goes through his nose into his stomache) so he can start 'eating' again. Until now, he is on IV nutrition and still as thin as a rail. We are praying that his appetite will return, but at least his stomache and intestines will be able to work again and hopefully he'll gain some weight(although I'm sure Julian will not be a happy camper about having a tube in his nose). The chemo can impact his kidneys and hearing, and will make him feel pretty sick, so we would appreciate your prayers about all of these things.
Tomorrow is the "Jammin' for Julian" children's concert and we are so excited! We hope to see you there and for those who can't attend, you can hear it via the internet on www.kociradio.com. The concert begins at 2:30 p.m.
Thank you for your continued prayers and support! Also, please keep a little girl named Emily in your prayers.
We are finishing up our 'break' from treatment and next week Julian starts round 2 of chemo. He'll be in the hospital for three days and will get an NG tube during that time (a feeding tube that goes through his nose into his stomache) so he can start 'eating' again. Until now, he is on IV nutrition and still as thin as a rail. We are praying that his appetite will return, but at least his stomache and intestines will be able to work again and hopefully he'll gain some weight(although I'm sure Julian will not be a happy camper about having a tube in his nose). The chemo can impact his kidneys and hearing, and will make him feel pretty sick, so we would appreciate your prayers about all of these things.
Tomorrow is the "Jammin' for Julian" children's concert and we are so excited! We hope to see you there and for those who can't attend, you can hear it via the internet on www.kociradio.com. The concert begins at 2:30 p.m.
Thank you for your continued prayers and support! Also, please keep a little girl named Emily in your prayers.
Tuesday, March 10, 2009
REMINDER - JAMMIN' FOR JULIAN - MARCH 21ST
An Open Children’s Pop Concert & Expo
When: Saturday, March 21, 2009
NEW TIME: 2:30 P.M. (Doors open at 2 p.m.)
Where: Newport Mesa Church
sanctuary, 2599 Newport Blvd., Costa Mesa
What: An open children’s pop concert and expo (suggested performers from preschool to 6th grade). KOCI FM 101.5 will broadcast the event live on radio and the Internet. All proceeds will benefit the Julian Dunn Cancer Fund for 5-year-old Julian who is being treated for a brain tumor.
Event contact: Richard Dunn, (949) 433-0639 or dunnwriter@yahoo.com.
Suggested donation: $15 per person, or a maximum of $60 per family. No charge for performers.
NOTE: REGISTRATION FOR PERFORMERS IS CLOSED
http://www.jamminforjulian.org/
When: Saturday, March 21, 2009
NEW TIME: 2:30 P.M. (Doors open at 2 p.m.)
Where: Newport Mesa Church
sanctuary, 2599 Newport Blvd., Costa Mesa
What: An open children’s pop concert and expo (suggested performers from preschool to 6th grade). KOCI FM 101.5 will broadcast the event live on radio and the Internet. All proceeds will benefit the Julian Dunn Cancer Fund for 5-year-old Julian who is being treated for a brain tumor.
Event contact: Richard Dunn, (949) 433-0639 or dunnwriter@yahoo.com.
Suggested donation: $15 per person, or a maximum of $60 per family. No charge for performers.
NOTE: REGISTRATION FOR PERFORMERS IS CLOSED
http://www.jamminforjulian.org/
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