Summer days
Posted 1 day ago
Summer days are (now) wonderful! Nolan and Rich have been going to Corona del Mar beach in the late afternoons lately where they have been boogie boarding and body surfing. Well, out of the blue one afternoon last week Julian said he, too, wanted to go! Prior to this, he was pretty determined to remain put at home. So, we packed our bags and off we went. It was the most wonderful hour-and-a-half I can remember in a long while. Julian was content to play with his sand toys while Nolan and Rich rode the waves. (After a week of huge waves, the day we were there it was safe and the water was turquoise clear.) This little afternoon outing sure cured a severe case of cabin fever! Today, Julian wanted to go again. Yippie! And, in a county of 3 million people, who found us at the beach? His grandma & grandpa and cousins, who had the same inkling to escape the heat as we did and knew just where to look for us! I am just now learning how to post photos on this website, so I hope these show up:
Some other special things:Julian has been getting special handmade cards every few days in the mail from some very nice people at Send Love Today (www.sendlovetoday.org). They send encouraging cards to people being treated for brain tumors. If I had the talent and time, it would be so neat to volunteer for this group!
Today, he received in the mail a CD with a song that was written just for him. It's really good! I can't copy it because I think its protected, but there is a link if you would like to hear it: www.songsoflove.org then click on Family & Friends Song & Ringtone Dowload link (toward the bottom of the page). Type in Dunn for the child's last name and the number 19624 in the 'record number' field. The small donation helps them continue to write songs for other kids with serious illnesses.
All in all, Julian is doing about as well as he has since this began. Still not eating and still having some nausea, but he is gaining weight, happy and as sweet as ever. I think the fact that he wanted to go to the beach shows he is feeling so much better these days. He had his NG tube changed out last week (that is always a bummer). A clinic visit this Thursday (and maybe a blood transfusion), and then a few weeks until another round of chemo. Thank you all for your love and prayers!
Wednesday, August 5, 2009
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