Not very good news
Posted 12 hours ago
Julian had his third MRI today since his treatment ended last January and we were anticipating another good report, however, they did see something suspicious on his lower spine that wasn't there before. It's a small spot, about the size of a rice kernel. So the plan is for him to have surgery on Nov. 5 plus a lumbar puncture to see if any cancer cells are floating around in the spinal fluid. They will analyze the growth and we'll know what it is. We will have a meeting with Dr. Shen next week to discuss treatment options in more detail. If it turns out that the growth is a return of the cancer, we're looking at chemo and radiation again and the cure rate drops pretty significantly. If, God willing, "all" he needs is surgery, he'll be able to return to school in about one week. We haven't said anything to either of the boys yet. Probably won't until later next week. We want to keep their routines as normal as possible. Julian has been so happy lately, enjoying school and the routine that he is in. Did not think we would be crossing this bridge so soon.
Friday, October 29, 2010
Monday, October 11, 2010
Back to School - A message from Andrea
Back to school, September 8.
I cannot believe it's been over two months since our last update. Well, these two photos sort of say it all: Julian celebrated his 7th birthday (and had a great time at his party!) and a few days later he started first grade at the same school as Nolan, Mariners Christian School. I think we were pinching ourselves the first few days of school; was this really happening? We sort of held our breath expecting a phone call at any time to come and pick him up, that he was too tired or that there may have been some other difficulty. But no such calls. How blessed we are that our son is able to return to school with his peers. And he is able to have the same first grade teacher as Nolan had three years ago, a wonderful, seasoned teacher who is supportive of his special needs. We know there are all kinds of 'late effects' of the treatment that may (or peprhaps, will) develop, but we're taking things one day/week/month at a time, and are so enjoying Julian and his new and better life now!
His next MRI is Oct. 28. We hope and pray that this one, just like the others since his treatment finished, will show no changes. Thank you for joining us in this prayer. Prayer is powerful!!!!
I cannot believe it's been over two months since our last update. Well, these two photos sort of say it all: Julian celebrated his 7th birthday (and had a great time at his party!) and a few days later he started first grade at the same school as Nolan, Mariners Christian School. I think we were pinching ourselves the first few days of school; was this really happening? We sort of held our breath expecting a phone call at any time to come and pick him up, that he was too tired or that there may have been some other difficulty. But no such calls. How blessed we are that our son is able to return to school with his peers. And he is able to have the same first grade teacher as Nolan had three years ago, a wonderful, seasoned teacher who is supportive of his special needs. We know there are all kinds of 'late effects' of the treatment that may (or peprhaps, will) develop, but we're taking things one day/week/month at a time, and are so enjoying Julian and his new and better life now!
His next MRI is Oct. 28. We hope and pray that this one, just like the others since his treatment finished, will show no changes. Thank you for joining us in this prayer. Prayer is powerful!!!!
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