Posted Apr 5, 2009 6:24pm
Just a quick update: Julian was finally discharged from CHOC on Friday, April 3rd! Our 3-day stay turned into 10. It's a good thing we were able to go home because I honestly don't think I could have kept him there one more day. He was so ready to go home and was very worried that someone might move his Legos. Fortunately, most of his Lego creations were still in the same place where he left them. We are trying to get the hang of a new feeding program and 'round the clock meds. Julian is pretty tired much of the time, but he has moments when he perks up and does a little jig or surprises us by saying something funny. He'll have 1X weekly outpatient chemo treatments until his next overnighter, May 6. Hopefully, that one will be much shorter than this one! We are praying for our new friends we met at CHOC: Adrian and (another) Julian, as well as Emily.
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