First, let me say thank you to everyone for your amazing support of Jammin' for Julian! It was a wonderful day of beautiful music made by the most darling children and teens. I am still so inspired by it and by the love that was demonstrated by everyone. We will never forget it.
Julian has handled this week's chemotherapy well. He did get sick, but they have a great drug, Zofran, which minimized the nausea. He has been mostly tired and a bit depressed because he really wants to go home. Originally, we thought this would be a 3-day visit, but we are now in day 6. He doesn't want to get out of bed or visit the playroom, either. The main thing is that they want to address his eating problems. He will have an endoscopy done today to look inside his stomache and small intestine, and then an NG tube placed into his nose so food can go into his stomach. He won't like that very much, but it has to be done. Right now, he has no desire or interest in eating and has had no solid foods for months. So, we're hoping his system will get used to food again.
Well, that's the latest from room 392!
Love,Andrea and Julian
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